Projects noted below with an * were done at Gaylord in its role as a partner of the Spaulding New England Regional Spinal Cord Injury Center (SNERSIC), one of only 14 Model Spinal Cord Centers in the United States.
* My Care My Call (MCMC)
The MCMC project uses telehealth techniques to improve the health and function of people with traumatic SCI. MCMC will help individuals with SCI find and maintain quality primary care, including preventive screenings and prevention of secondary conditions through conversations with a human Peer-Health Coach for identified problems; and an accompanying user-friendly resource book.
* SCI-FI Enhancement and Validation (Spinal Cord Injury - Functional Independence Computer Adaptive Testing)
The SCI Model Systems National Database uses the Functional Independence Measure (FIM) as a tool to assess and track function. But there are concerns about the appropriateness of using the FIM in the SCI population because it may miss differences in function among people with SCI who have different levels of injury severity. Seven Model Systems Centers conducted a study over the past five years and developed a new measure that includes functional activities relevant and important to persons across all levels and severity of SCI injury. We are now continuing this study with nine Spinal Cord Injury Model Systems programs to enhance and evaluate the this new tool, called the Spinal Cord Injury Functional Index (SCI-FI).
* SCI-QOL (Spinal Cord Injury Quality of Life Computer Adaptive Testing)
This project will evaluate the validity, sensitivity, and responsiveness to change of the SCI-QOL measurement system. The sensitivity of the scales to detect change and the direction of change of key areas of functioning including activity limitations will be examined as well as secondary medical complications, emotional functioning, and social participation. These variables will be assessed at multiple points during the recovery process and injury “trajectories” of change will be developed from shortly after injury through the initial years of living with a disability.
* EQuATe- Equity and Quality in Assistive Technology
The purpose of this project is to improve the quality and equity of assistive technology provision and outcomes for individuals with SCI. By understanding utilization and impact of assistive technology, raising awareness of variation in wheelchair quality and identify factors associated with variation in quality and equity of care and outcomes, this project will identify areas of need in the procurement of SCI specific technology needs.